The National Organization for Rare Disorders (NORD) Launches 7,000 Mile Rare Movement Challenging Americans To Chart 7,000 Miles During Month Of February
Summary
The movement will kick off Feb. 1 and run through the end of the month, culminating on Rare Disease Day on Feb. 28."We are inviting everyone—families, friends, advocates, patients and the general public—to join us in actively raising awareness and funds through our new 7,000 Mile Rare Movement," said Peter Saltonstall, NORD president and CEO."Our hope is that together, we challenge the community to do something new and different and get involved to make a tangible impact for the 30 million Americans dealing with a rare disease today."Registrants will also have the option to purchase a participant pack which includes a T-shirt to wear on Rare Disease Day, a commemorative medal, and a supporter bracelet.NORD represents and provides advocacy, education, patient assistance programs and research on behalf of the rare disease community.