Survey Shows Risk Growing Along with Data Sharing
Summary
These approaches do not adhere to globally accepted data sharing guidelines, including those from Health Information Trust Alliance (HITRUST), the Institute of Medicine (IOM), and the Council of Canadian Academies. Although Safe Harbor is recommended by regulators, it represents a minimum standard for de-identification that can leave data vulnerable to a breach. While there is currently no universal standard for the de-identification of protected health information (PHI), efforts to create a framework are underway. HITRUST recently released a de-identification framework, which organizations can use when creating, accessing, storing or exchanging personal information. A large portion of respondents is interested in sharing data externally in the future with pharmaceutical companies (27%) and device manufacturers (14%).
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