PicnicHealth and Wylder Nation Foundation Announce ASMD Accelerate to Contribute to Acid Sphingomyelinase Deficiency Research
Summary
“We couldnt be more excited to partner with Wylder Nation Foundation, patients, and their families.” “Adequately caring for a child with ASMD typically requires the ongoing involvement of multiple physicians associated with different hospitals and academic institutions, creating challenges for families to access and organize their complete medical history,” said Steven Laffoon, Co-founder and President of Wylder Nation Foundation. Additionally, it allows Wylder Nation and ASMD researchers to access valuable, anonymized information from medical records that was previously inaccessible. PicnicHealth is a healthcare technology company that partners with patients, porting their complete medical records into an easy-to-use online application. The platform gives patients unprecedented access to and control over their medical records and, with their consent, the opportunity to contribute this valuable data to further scientific research. Founded in 2013, the organization is focused on fostering collaboration among academic researchers, industry, and other stakeholders to accelerate the discovery and development of treatment options for ASMD and other similar Lysosomal Storage Diseases.
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