International Rett Syndrome Foundation to Host 15th Annual Strollathon
Summary
The one-mile family-friendly stroll, which will be held at the JCC St. Louis located at 2 Millstone Campus Dr., includes a visit from Fredbird, entertainment and food.The St. Louis Strollathon has raised a total of more than $750,000 since its first event in 2008. The Strollathon is the area’s major fundraising event and brings together families from across the Midwest affected by Rett Syndrome. All proceeds will benefit the International Rett Syndrome Foundation.Rett syndrome is a rare genetic neurological disorder that occurs almost exclusively in girls (one in 10,000 births), more rarely in boys, and leads to severe impairments. Rett particularly affects speech, purposeful hand use, and coordination, leaving individuals trapped in their own bodies, understanding more than they can communicate. The clinic has a team of specialists with substantial experience in the diagnostic evaluation and treatment of individuals with Rett syndrome.Since 2004, these nationwide family-friendly strolls have raised more than $15 million to advance IRSF’s mission to empower families and accelerate research toward a world without Rett Syndrome.